The privacy of research data is addressed through a combination of safeguards. These safeguards are primarily overseen by the Human Research Protection Program (HRPP) and the Institutional Review Board, a committee which reviews research involving human subjects.
To learn more about your rights as a participant in IU research, review the Human Subjects and Institutional Review Boards' Information for Participants. Individuals who consent to participation in a research study have a number of rights, including the right to be told:
- The purpose of the research and what researchers will do with your information
- The risks that can reasonably be expected from participating in the research, including informational risks
- The right to decline participation in the research for any reason or to withdraw from the research after you have begun participation
Go here for a detailed listing of IU policies relating to research.
The HRPP can assist with questions and concerns regarding privacy of research data. HRPP staff can be contacted by email at firstname.lastname@example.org or by phone at 317-274-8289.
We encourage you to explore the links above and share any thoughts with us on this important subject at email@example.com.